Fifth Cancer Survivorship Conference 2018
St John’s College, Oxford
Friday 7th September 2018
Put this date in your diary now! More details to follow in due course.
For health care professionals. Attendance will qualify for CPD points.
live well….with and beyond cancer
Conference to be Chaired by Baroness Rennie Fritchie DBE
The 2016 Conference was a great success – summary of topics below:
The data behind the English Cancer Strategy
Dr Jem Rashbass. National Director for Disease Registration and Cancer Analysis. Interim Cancer Lead. Public Health England
England now has one of the most advanced and sophisticated cancer registration services in the world. While the data has traditionally focussed on diagnosis, treatment and outcomes, we are only recently beginning to get a better idea of the events that follow a diagnosis of cancer. One of the most important challenges now is to look at what the data can tell us about how each individual might be affected by their cancer diagnosis and treatment and then what life will be like in the future – living with and beyond a diagnosis of cancer.
This talk will explain the range of data we now have, what this might tell us about the survivorship period and how we work with patients and the public to make this data accessible and meaningful.
Living with Incurable Cancer: meeting Survivorship Needs.
Speaker to be confirmed.
Most cancer survivorship initiatives are designed for patients whose treatment is intended to be curative. For patients living with advanced cancer, survivorship requires a different emphasis. As patients prepare for death we hear how health professionals are meeting the many challenges enabling their patients to live well and make the most of the time they have left.
The Importance of Discomfort: how Acceptance & Commitment Therapy aims to build fulfilling lives for people with cancer.
Dr Ray Owen. Consultant Clinical Psychologist and Health Psychologist, Wye Valley NHS
Acceptance & Commitment Therapy (ACT) is a ‘3rd wave’ (acceptance- and mindfulness- based) Cognitive Behavioural Therapy which has grown hugely in both evidence-base and clinical application over the last 15 years. Although it is used across many types of problem, it is particularly useful in helping people rebuild fulfilling lives in the face of major changes.
A distinctive feature of ACT is that it sees the (understandable) urge to get rid of unwanted thoughts, feelings and physical sensations as part of the problem, rather than the goal of treatment. This presentation will demonstrate how ACT helps patients learn useful skills and build a better life even and especially when – life is difficult, if necessary accepting the presence of discomfort.
The Consequences of Cancer and it’s Treatments.
- When does Cancer Rehab and Support start?
The Berkshire Cancer Rehab Team – Formally Berkshire Macmillan Wellbeing Team -Nursing Times winner of the Cancer Nursing award 2015 – and the Macmillan One to One, will present and discuss case studies and the service that is provided to people living with and beyond cancer.
The diverse team are able to provide holistic and practical advice and support to people with cancer from the time they are diagnosed onwards.
- The Breast Radiotherapy Injury Rehabilitation Service (BRIRS).
Denise Moorhouse, Manager Pain Services, RNHRD, Jane McKenna, Lead Nurse, BRIRS, Bath.
The Breast Radiotherapy Injury Rehabilitation Service (BRIRS) offers specialist multidisciplinary rehabilitation for patients living with complex late effects of breast radiotherapy. The service is provided by the Royal United Hospitals NHS Foundation Trust at the Royal National Hospital for Rheumatic Diseases in Bath and is funded via NHS England and supported by Macmillan. This presentation will provide an overview of the service including: setting up the service, referral criteria, MDT approach, outcomes data and service development plans.
Denise Hardy. Clinical Nurse Specialist, Lymphoedema, LSN Nurse Advisor, Kendal Lymphology Centre.
Unfortunately, despite more conservative management/treatment of cancer; lymphoedema remains a problem for many and can affect quality of life both physically and psychologically. Prompt referral and early intervention can reduce severity of symptoms. This session will provide an overview of patients at risk, what they can do to reduce the risk of lymphoedema developing and how to effectively manage it should swelling become a problem.
The Challenges of a Cancer Diagnosis in someone with Learning Disabilities.
Invited Speaker: Tracey Lloyd. Macmillan Learning Disabilities CNS, Hywel Dda UBH
Exercise for Life.
Dr Denny Levett, Consultant in Peri-operative Medicine and Critical Care. Southampton University
In this presentation Dr Denny Levett will review the evidence that physical activity protects against some forms of cancer and reduces all cause mortality. Furthermore fitter individuals are more able to withstand cancer treatments such as major surgery and chemotherapy and consequently have lower mortality rates. Finally, she will review the early evidence that exercise may be used as specific cancer treatment.
Living with Cancer: On-line Peer Support using Social Media
Jo Taylor, Patient Advocate, Founder of abcdiagnosis, Blogger and Social Networker
How the website www.abcdiagnosis.co.uk and social media are being used to support primary and secondary breast cancer patients make informed choices by providing information and up to date news on treatments, breast surgeries, consultants, hospitals and useful links.